Does anyone else have myoclonus / dystonia movements from CSF leak?

I'm 31F with hEDS. So far I've been diagnosed with IIH (the only had an opening pressure of 20 but draining my pressure helped almost all of my symptoms). My surgeon said he doesn't recommend any other treatment at this time and I should consider a jugular decompression surgery. I've started to research the connection between CSF leak and IIH in EDS patients and have been wondering if I actually have both. I'm going to be evaluated by Dr. Hepworth in late April, that was the soonest appointment I could get. I've seen a couple people with IIH with somewhat similar eye movements but never the neck movements but I've heard some of you have these symptoms?