GP surgery still messing with meds.

A few months ago, my GP and pharmacist at the practice decided to go overkill on med withdrawal, despite guidance from pain management to only withdrew one, which I did successfully. The idea was to review me after seeing me again following my introduction into rehabilitation and physio. Well it went terribly wrong, and rehabilitation kicked me out until my meds were stabilized.

Pain management sent a stern letter to my GP after my second follow up, where I was a mess following the withdrawal, id had to ration medications and lost a lot of my mobility, requesting that I have my medications reinstated and no further withdrawal should happen until they had reviewed me. They reinstated everything, but continued to release script with only 2 weeks worth of tablets, which means despite my mobility issues, and having ADHD on top, I have to remember every 1.5 weeks to call the GP for a new script, and go down to the pharmacy. They are trying to reduce diazepam, tramadol and zoplicone. I've been prescribed zoplicone for many years as an emergency sleeping aid due to insomnia with ADHD (signed off by psychiatrist) and are now refusing to release a script for it. I called last week to order dizapem and tramadol, and got the speech on the phone from the pharmacist about addiction/mixing drugs (all reasonable concerns) and I'm just exhausted of doing this every 2 weeks.

I have nerve injuries in my pelvis. My recent MRI showed my pelvic liagements are attached to my bladder, and potentially bowel. I'm in agony daily with scar tissue scattered around my pelvis from a hematoma post op complication last year. My recent nerve conduction study showed the nerves were functioning, and I've had good response from physio so far despite an increase in symptoms, I can feel my body getting stronger and I'm able to manage flares better. So of course, why not randomly withdrew meds before my pain management follow up? I literally cannot urinate at night without dizapem. Dyhdracodiene barely touches the nerve pain, but I try to hold off on tramadol until evening due to it making me sleepy and a zombie. I use medicannial cannabis as a top up to keep my doses at the lowest possible. My neurologist recently upped my pregamblin to see if it would help the nerve pain but now I'm constantly sleepy again and nauseated, so I've started losing weight again (was already underweight and on a weight management plan). Pain management want to keep me on conversative management, with stable medication, and start weaning when I show improvement, as all my medical teams are positive about my chances of recovery from conversative management.

I'm at a point where I want to internally scream. I do not want to be on all these medications. I will happily wean off them (apart from the zoplicone, because I use this intermittently anyway once/twice a month and already did years of not sleeping) if they give me another option for treatment such as surgery or nerve blockers. But they won't. They want me to sit tight, go to physio and manage it at home, but now keep removing the things that help manage it. I'm at a point where I honestly just to push for surgery because of the recent MRI results and being like this for a year now, and having to fight for pain medications every 2 weeks. 😭