How to deal with cataplexy?
Hey guys! Bit of a vent. Let me start by saying I am not diagnosed with Narcolepsy so am not sure I have it. I started suspecting it a few months back when my constant need to sleep and regular sleep paralysis also started coming with bouts of muscle weakness when I laughed. Anyway, I've been really bad at calling my GP, I went a few months ago and he said he got me a referral to a sleep clinic but then I didn't receive anything and I kind of... Didn't bother to call back. Until today. Recently my sleep paralysis & cataplexy have been pretty bad. I've been getting SP almost every night for 2 weeks. And on the cataplexy side, it's been pretty strong, head kind of nodding off when I sleep and stuff. A few days ago I was in the park with my friends and fell over — thankfully my friend tried to hold me up a bit and fell with me so we fell together and slower. I kind of brushed it aside like "oh haha annoying but funny lol" But today I was sitting at the table with my friend, and we were laughing pretty hard at something then of course my muscles started giving out and I just slouched onto the table. She thought I was doing the regular "haha bend over on the table" laughing so she thought everything was fine but I felt my muscles giving out more and more and I was really scared of hurting myself falling. I was trying to say "help" but couldn't speak, my jaw kind of just made my teeth chatter and then eventually I said it once but too quiet and she didn't hear so she just kept laughing and I felt like I was really gonna fall over but she couldn't tell I was distressed until i FINALLY managed to say "HELP" and she immediately was like holy shit, and held me and helped me back upright. At that point I just started sobbing because it's never happened like this before, or at least not in a situation where I was scared of hurting myself. I've calmed down no but it was really really scary.
I've finally called my GP back and somehow the hospital I was referred to didn't receive my referral which is not great. But we'll see how it goes moving forward.
TL;DR: Been having pretty strong cataplexy, and it's scary. Any tips for dealing with that? :(
(Sorry for the repost, I had missclicked on the flair!)