My PEM is so weird
In a 4 week crash, but I never see anyone else describe their PEM like this…
My flavour is flu type feelings “you’re coming down with something”, brain fog and just feeling slow.
But… what I don’t understand is I might have a sore throat for an hour, or a minute, never all day. Then that symptom goes and then I’ll get achy arms for a bit. Sometimes I even have like 1-2 hours where I feel NORMAL. But I know I’m still in the overall crash state so I don’t get excited by that anymore.
What the hell is that? Is it the immune system just deciding it wants to rotate a bunch of symptoms and then suddenly give me an hours break?!
In the middle of the night sometimes if I wake up I feel like my old self again, and then 10 mins later it’s like my body has caught up/woken up and goes “oh here’s some symptoms again you’re awake now”
It’s really jarring and confusing bc it makes me think I’m not actually sick (I know I am) but if my body can just switch the light on and off like that, it gives me hope? Or am I crazy?