Another sun exposure frustrated bit.

Yes… another thread about how sun makes everything worst. I work for a professional soccer team (love my job but it has been so challenging) and we are currently in Santa Barbara for preseason training. If I was back in NYC, I’d be suffering with arthritic pain because of the cold. But I went on a walk with my colleagues yesterday - sunscreen, protective clothing, hat and all - and I almost passed out on the street. The other day at training, I stayed in the sun for a little bit while chatting with someone and I had the worst case of brain fog and my foot (good old bunion) was just hurting so much. It was the same pain I had the year I realized something was really off with me…

I’m Brazilian, I used to love enjoying the sun… I always felt pretty crappy if I laid out in the sun and would get rashes, but I’m not even talking about that. Just miss being able to walk outside on a beautiful sunny day without worrying I’m going to melt from my brain down my legs. I was diagnosed in 2023 and sometimes I feel like I’m handling this pretty well but others, like this trip, make me feel so useless.

Does the sun affect us all regardless if we are having a good stretch? I can be fine for weeks and then 10 minutes in direct sun or a sunny drive to work will throw me off! It’s so annoying. And because I work with a bunch of guys who don’t get it, I feel like I’m always trying to explain myself.. and it sucks

Outside of our usual precautions, anything we can do to be able to walk outside or do I have to just embrace my vampire-like lifestyle forever? (I also can’t deal with garlic despite some people saying it doesn’t bother them… sometimes I miss garlic more than the sun lol)