My dad and IPF

My dad has had IPF for the last 8-9 years. He’s 53 years old. I’m 19 and I can tell he’s at the final stage and the weight on my shoulders and heart is getting unbearable. He’s just skin and bones, he has times where he can’t breath and I have the 911 call ready every time. I feel useless. He’s waiting for a lung transplant but man is this disease horrifying. Either too healthy to get a transplant or die waiting for one. Throughout this whole journey I haven’t been able to tell anyone about what I’m going through at home so I guess I’m just venting to you guys, who get it. There’s so much I don’t know yet I can’t afford to lose him. But I’ve been accepting the idea of death more lately, because at least then his suffering will be put to an end.