Debilitating headaches for over 3 years now. Constant cold compress. Burning headache, strong pressure in temples, pain across forehead, pain behind eyes, in ears, neck and upper back…finally seen a neurologist and have been prescribed duloxetine and nurtec. Has this combo helped anyone?
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.
Can anyone severe / very severe who are reactive to medications tell me your experiences with duloxetine? I’m being trialled on it for my headaches. Worried as I am v restless on SSRIs and trycilic antidepressants. TIA. X
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Hey. I’m just wondering if anyone else isn’t treating their POTS due to medication reactions? Even slow sodium salt tablets crashed me horrifically (I also have very severe ME). It’s a total nightmare!
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Hey. I’m just wondering if anyone else isn’t treating their POTS due to medication reactions? Even slow sodium salt tablets crashed me horrifically (I also have very severe ME). It’s a total nightmare!
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.
Ring-fence funds for research into ME/CFS
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Has anyone experienced restless leg syndrome / tingly joints from mestinon and it eventually passed?
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.
TMI! 💩 Does anyone else severe with slow gut motility/blockages/constipation feel worse/crashed when this issue is flaring?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
An online concert to help raise awareness of Myalgic Encephalomyelitis (ME) and to fundraise for research to find treatments and a cure for this horrible illness by supporting ME Research UK and SMILE for ME. Link in description and comments
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
The Canary & LCME Billboards are looking for volunteers for the Westminster protest on May 12th. Email address in comments for those not on Twitter
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.
The Canary & LCME Billboards are looking for volunteers for the Westminster protest on May 12th. Email address in comments for those not on Twitter
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
After decades, everything is #StillTheSaME on this year’s ME Awareness Day. The Canary & LCME Billboards will be protesting On Monday 12 May at Westminster over how the state has abandoned people with ME, & they want you to get involved!
A subreddit for people in the UK experiencing covid long haul
After decades, everything is #StillTheSaME on this year’s ME Awareness Day. The Canary & LCME Billboards will be protesting On Monday 12 May at Westminster over how the state has abandoned people with ME, & they want you to get involved!
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.
After decades, everything is #StillTheSaME on this year’s ME Awareness Day. The Canary & LCME Billboards will be protesting On Monday 12 May at Westminster over how the state has abandoned people with ME, & they want you to get involved!
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest
/r/EverythingScience is the sister subreddit to /r/science. With a broader rule set than /r/science, it is the place for high quality scientific content that doesn't necessarily reference a peer-reviewed paper from the last 6 months.
Long Covid may cause long-term changes in the heart and lungs and may lead to cardiac and pulmonary diseases
/r/EverythingScience is the sister subreddit to /r/science. With a broader rule set than /r/science, it is the place for high quality scientific content that doesn't necessarily reference a peer-reviewed paper from the last 6 months.
The more severe I get the more I can’t STAND wearing a bra. It’s so uncomfortable it’s almost unbearable! Anyone else?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Hi. My brother (now 29) was first diagnosed with ALL in Feb 2019. B Cell, Philadelphia -. Over 95% blasts. Took a while to get into remission, chemo only route. He relapsed a few weeks ago. He’s on inotuzumab to try and get him into remission ready for a BMT…
Leukemia - Discussing this blood cancer and its many types in a friendly, supportive environment
People disabled by ME and Long Covid across the UK send out an SOS. - INFO IN LINK!
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.
People disabled by ME and Long Covid across the UK send out an SOS. - INFO IN LINK!
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.
A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Sister of bedbound ME sufferer urges more funding
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Sister of bedbound ME sufferer urges more funding
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.