Severe patient burnout
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Why do I keep fainting back to sleep in the morning?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Does anyone else feel like they’re stuck in a state of constant inflammation and exhaustion, no matter how much they rest?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Anyone else have autoimmune-like markers (ANA, CRP, etc.) without a rheum diagnosis — and feel better on NSAIDs?
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.
Is it reasonable to start Plaquenil before getting second opinion? No Sjögren’s dx yet.
This is a science positive, evidence-based community for people to discuss Sjögren's syndrome.
Any London (UK) AS specialising rheumatologist recommendations?
/r/ankylosingspondylitis is a place for patients of ankylosing spondylitis and other axial spondyloarthritis. These conditions are autoimmune diseases that cause inflammatory arthritis of the lower back, hips, and other joints.
A friendly reminder about UK Tocilizumab trials
For long covid patients who are interested in or due to receive Sipavibart as treatment, to share experience and knowledge.
UK folks - here is an email framework to your MP regarding Sipavibart availability in the UK
For long covid patients who are interested in or due to receive Sipavibart as treatment, to share experience and knowledge.
Stopped sweating suddenly & very thirsty
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Stopped sweating suddenly & very thirsty
Dysautonomia is an umbrella term for conditions in which the autonomic nervous system malfunctions.
About my husband
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Any severe (bedridden) people with ME/CFS or long COVID here?
For long covid patients who are interested in or due to receive Sipavibart as treatment, to share experience and knowledge.
Has anyone’s fatigue initially exacerbated by Ivabradine never improved?
Dysautonomia is an umbrella term for conditions in which the autonomic nervous system malfunctions.
Has anyone’s fatigue exacerbated by Ivabradine never improved?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
If I have to discontinue Parnate and Nardil is ineffective, what’s next?
Are you taking an MAOI? Going to? Want to but don't know how? Informed and want to help others? Something else MAOI-related? Well boy, have we got the place for you! (It's this sub) Please note: Do not take ANYTHING on here as medical advice. Talk to a doctor! If you're new (or not), check out the welcome post & Wiki for MAOI resources and information!
Any updates from Dr Astorri and the situation in the UK? I feel so desperate
For long covid patients who are interested in or due to receive Sipavibart as treatment, to share experience and knowledge.
Any tocilizumab trials participants?
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.
Stellate ganglion block in London?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Stellate ganglion block in London?
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.
2nd/3rd wave of Long Covid (3+ Years) – Is anyone completely bedbound? What to hope for?
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.
Has Tranylcypromine caused an increase in prolactin in anyone?
Are you taking an MAOI? Going to? Want to but don't know how? Informed and want to help others? Something else MAOI-related? Well boy, have we got the place for you! (It's this sub) Please note: Do not take ANYTHING on here as medical advice. Talk to a doctor! If you're new (or not), check out the welcome post & Wiki for MAOI resources and information!
Can Ivabradine cause dry eyes and dry mouth as potential side effects?
Dysautonomia is an umbrella term for conditions in which the autonomic nervous system malfunctions.
Does anyone else wake up at 3-4 am every night? All sorts of sleep meds won’t help :(
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.
British patients, what Dr have you found helpful and have you tried to get any help abroad?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Such an intense feeling of malaise that it’s hard to tolerate? And abnormal T-lymphocytes levels
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
