What to expect with taking Fludrocortisone?

If you had to find something positive about this illness, what would it be?

I'm a hardcore buoy hater

Let's talk about snacks!

Shirataki noodles?

Had to chop off my hair in bed today due to being severe and mostly bedbound for 2+ years

Heaviness in chest causing a cough

I've been waiting over a decade for dextronaltrexone. This is a drug to look out for.

I'm severe and being held in psych. How do I get them to understand and respect my needs extreme needs?

One annoying thing about being bedridden and only being able to listen to things is that I chew through an audiobook in a day or two, since there is little else to do. With one title costing $15 or more, this makes for an unreasonably expensive hobby

Advice on how to calm yourself while mentally struggling?

Smelly poops linked to Quercetin???

Stool smells like hay / manure / grass — confused

Method vs. Seventh Generation Cleaning Products

Anyone know of POTS specialists that do virtual appointments?

How have people recovered? What does the latest research say about our best treatments??

lifelong insomnia, inability to nap with CFS/ME

Is this an adrenaline dump?

Who else is a self-sabotaging goon that knows most of their current deterioration is because they can't stop doing things they know are harmful

Does getting sick again permanently worsen your cfs?

I’m 21 years old and I’ve managed to save about 30k in the last 3 year’s driving Uber. I don’t own anything and live with my parents. I’ve decided to join the party and go all in.

Does anyone follow the Workwell Foundation heart pacing of 15 over your resting heart rate?

I went from extremely severe to severe with ketamine and I failed to pace and got worse again

what the fuck helps you sleep with this god for saken issue

Has anyone figured out how to sleep a full night?